Happy 3 months Lillie!
Her stats: 13 lbs, 7 oz and 24 inches long
She is one ounce shy of doubling her birth weight, something that usually happens at the 6 month point! I just can't believe how fast she is growing and gaining weight! She was in newborn clothes for 6 weeks and then proceeded to go through her 3 month clothes in another 6 weeks! For a baby that started out in the 20th percentile for weight, she sure is catching up fast!
We had our genetics appointment at Children's Hospital last Thursday (that's how we found out her weight and length because her next appointment with the pediatrician isn't until 4 months) and found out more about how we will proceed with her galactosemia. When she starts solid foods, she'll be able to handle rice cereal and fruits and veggies just fine. However, when she progresses to table foods, she won't be able to have anything with lactose or galactose in it. This basically includes anything made with milk or a milk by-product. I don't see it being a huge inconvenience for us. It's going to be harder to remind others (like grandparents who want to slip her a spoonful of ice cream) of her limitations.
Then at one year old, we do something called a galactose challenge. We gradually introduce milk products into her diet for two weeks and then her levels are checked. If we time it right around her birthday, she can have cake and ice cream on the big day. Most babies do just fine and are able to be on a regular diet going forward. In fact, the dietician that we work with said she sees about 20 cases a year and she's never had a baby fail the challenge.
Her blood was drawn again and we are waiting for the results. She has been on soy formula since October 23rd and they are hoping to see that the build up of galactose that was in her system has been broken down and burned off as energy. Keep your fingers crossed!
7 comments:
She is growing so fast!! Glad to read the update is very hopeful. Her announcment was so cute- I loved the pictures. I still think that she is looks so much like Roger. (how does this happen, our girls look like their daddy's!)
Great news for the first birthday!
Such a cute baby!! I can finally leave a comment. I never could on your other blog for some reason!
Wow she is getting big! She is so cute Christie!
Oh and something has been left for you on my blog :)
What a cutie! Can't wait to see her again.
Lillie is so adorable. Glad the galactosemia isn't too terrible at this point. I'm praying her body adjusts and all will be fine!
My name is Jessica Wohld. I stumbled on your blog this afternoon because of your reference to Galactosemia. My 21-month old son, Ethan, has the classic form of the disorder. I am curious about the galactose challenge that your daughter will take at a year old. If you are interested in contacting me you can visit my blog at: wohldfamily.blogspot.com (username: wohldfamilyblog, password: ethanscott) or email me at teacherjess@hotmail.com.
Thanks!
Jessica Wohld
ps...Lillie looks absolutely beautiful and so healthy.
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